A Wheelie Good Chat
A Wheelie Good Chat is hosted by me, Sam Cole. I dive into real-life experiences of living with a physical disability.
With raw honesty and a touch of humour, I explore everything from daily challenges to societal assumptions, shining a light on the stories that often go unheard.
Each episode features open conversations and reflections that aim to break barriers, challenge the norm and inspire more inclusive thinking, one chat at a time.
Follow along on Instagram: @awheeliegoodchat | @sam.bamalama
A Wheelie Good Chat
43. Stigma, Support & Speaking Up with Josef Bandera
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Some conversations are polite. This one is useful.
I’m joined by Josef Bandera, a Perth-based author and disability advocate, to talk about what inclusion and disability rights actually look like in real life. Josef shares why he’s proud of his disability, how stigma still boxes people in, and why having a voice isn’t a bonus, it’s a basic right.
We get into the reality of support work, what makes a good support worker, what happens when workers are under-trained, and why consent matters, especially when social media comes into play.
We also talk participant choice, asking better questions when hiring support, and why support should align with the person, not the worker’s preferences.
And we don’t ignore accessibility, from footpath gradients to “accessible” spaces that miss the mark.
If you care about disability inclusion, the NDIS, or understanding what respectful support actually looks like, this conversation gives you something to take away.
Check out Josef’s work: Book | Instagram
Thanks so much for listening to A Wheelie Good Chat! Your support means the world.
Follow along on Instagram: @awheeliegoodchat | @sam.bamalama
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Acknowledgement And Setting The Tone
SamI want to start this episode of A Wheelie Good Chat by acknowledging that I'm recording on Whadjuk Noongar country. I pay my respects to the Elders past, present and emerging. Always was. Always will be Aboriginal land. I'm your host, Sam Cole, and this is A Wheelie Good Chat, where I get real about life with a disability and everything in between. Yes, even the not so PG stuff. I live with a condition called dystonia, and I started this podcast to break stigma and share the things we, as a society, don't talk enough about. Today I'm joined by Josef, who is an author, advocate, and someone who is really passionate about inclusion, disability rights, and making sure people with disabilities have a voice. In this episode, we talk about his books, his experience living with a disability, the importance of good support workers. And some of the barriers that people with a disability still face in everyday life. We also chat about advocacy, accessibility and why it's so important for people to ask questions, speak up and be heard. So let's get into it. Thank you so much to Josef for joining me on this episode today. Hi, Josef. How are you going?
JosefGood, Sam. It's good to be on here.
SamI really appreciate you reaching out to me and taking the time to you know, tell me briefly about yourself in the initial message.
JosefWhy I wanted to come on this podcast is I thought it looked inspirational. I think it is excellent that someone with a disability is doing something like this. I think it's actually quite emotional and beautiful.
SamThank you. That's very nice to say that. Do you mind telling the listeners bit about yourself?
JosefSo I'm a young man with a disability, so I am based in Perth.
SamMm-hmm.
JosefI'm originally from the southwest of Western Australia, in Bunbury, so, yep. Grew up in the Southwest and I am a, you know, a passionate person.
SamYeah, we love passion on this podcast.
JosefI also feel there's a lot of changes in the NDIS and disability space currently happening, and a lot of global changes, um, with the current global crisis and what's going on in the world is affecting people with disabilities, with the current fuel price issues and you know, just other barriers that are happening in the global world. Which I think are affecting people with disabilities and there's been a lot of bad in the media with different things happening with disabilities and people with disabilities. Bad things have happened to them in regularly, not just in Western Australia, but Australia wide. I've noticed there has been a lot of changes and lot of issues with different things and injustices and stuff.
Support Workers Social Media And Consent
SamAnd so what kind of, things and injustice have you seen?
JosefI saw a report the other day where support workers ill-trained and not trained in supporting people with disabilities. I see this happen all the time where there's participants left in terrible situations where they're left to, um, defend themselves'cause they've got incompetent support workers. And, you know, I've got a lot of good support workers and I know a lot of good people out there. And I've learned a lot from a lot of people and I think social media is one of the best things that have ever happened because I see a lot of people with disabilities blogging and talking about their lives, and I think that's brilliant. But there is also a boundary of where if they cannot understand. Some people believe it's a bit taking advantage of. I think if you are verbal and you have understanding of what's going on, if you don't understand what's going on and your support workers filming you, it may be a bit of a challenge.
SamSo the consent around being on their social media and that, is that kind of like the conflict of what you're speaking of?
JosefYeah, the conflict of social media.'cause I know it comes up a lot in social media'cause I'm on TikTok and Facebook and stuff I see. Um, what goes on.
SamHave you ever been in that situation where you know a support worker was filming you and you felt uncomfortable? Or is it quite like a friendly relationship you have with your workers?
JosefI have a friendly relationship with my workers.
SamThat's really important to have, or I feel that's a really, valuable relationship to have, especially if you're seeing them quite regularly. You don't want just anyone coming into your life. You wanna have people who you feel safe with and, and you can actually see them outside your hours and they're someone who you would actually be friends with and can actually connect with on a deeper level, rather than just having someone just come and go in your life, if that makes sense.
Writing Books And Telling Stories
JosefExactly.
SamYeah and I remember in your initial, message to me that you mentioned that you had written a couple of books.
JosefI've written books on disability and disability rights. Yeah. They're both about inclusion, one's about, the deep diving into support workers, the good, the bad, and whatever else we support.
SamThat's amazing. What inspired you to write those books initially?
JosefWhat inspired me to write them was because I saw an opportunity for people with disabilities to tell their story. So I did that for an organisation called Book Incubator. Kate, she's a lady from the Southwest and she does like therapy to teach people. And you know, I wanted to tell my story and wanted to hear other people's stories. Yeah, it was a very interesting time.
SamWhat was the writing of the book process like for you?
JosefIt was a very good opportunity. Um, so I got people together. I started writing concepts about my book.
SamSo you started off with like an idea that you had?
JosefYeah, so I wrote that on my iPad and then I sent it to get it edited and then the process of writing about,'cause there's things that I couldn't put in there because bad things have happened and other things.
SamSo was that more for keeping yourself safe from the implications if you released it?
JosefYes.
SamYeah. So that must have been quite tricky for you to not feel that you can leave everything in. There were certain things you had to take out.
JosefMm-hmm.
SamI'm sure the listeners would love to know where can people find your books?
JosefThe one that I advertise is Josef, so just J-O-S-E-F. And you can find it on Amazon and other, networks.
SamBeautiful. That's so good that you have a passion and you're following it through. And it also sounds as though you're very advocacy driven.
JosefYeah, I'm very advocacy driven.
SamWhat has your experiences been like living with a disability?
JosefIt's been challenging. There's a lot of stigma with people with disabilities.
SamYeah. And what kind of?
JosefStigma with having a disability and, think people see people with disabilities as it, can be challenging.'Cause I think with disabilities, sometimes, you know you need extra support with stuff.
SamAnd so the stigma that you have felt was people putting you into a box.
JosefYes.
SamAnd that must be really hard for you
JosefI feel very honored, like to have a disability. I feel honored.
SamOkay. Yeah. Do you mind telling me a bit more about that?
JosefBecause feel it's given me a lot of opportunities to advocate and to meet people, and wouldn't have met people like you, you know? And, I think we need people out there saying what they wanna say. I think a lot of people shut down, and I see this in agencies.
SamThat's a really beautiful I guess way to frame it, that disability has given you this great opportunity and, you may have not written a book if you didn't have a disability and that kind of thing.
JosefAnd I wouldn't have had the social opportunities that I've had, with my programs and I'm gonna shout them out.'cause I would like to, because there's few people in particularly that I would like to shout out. I don't wanna sound rude, but there's a few people I think would be good to acknowledge what they have done.
SamOf course. Absolutely.
JosefI've got a few programs. Yeah.
SamAnd what are these programs?
JosefI do social programs, so I've got a program called Lightbulb, which is a social program and I do social things.
SamBeautiful. And how often do you do that?
JosefI do that once a week.
SamIt's so good that you have that social aspect, meeting people and getting out and about. That's really important.
JosefYeah.
SamAnd so what kind of things do you do with them?
JosefI do different social things with them, and do activities and stuff. I was only thinking about this, the other day like with them, they'll get the participants together and get them to choose the activities.
SamThat's amazing. Okay. So it's not just the manager or whoever is creating the, the plan of what's gonna happen on that week. It's involved the participants, is that what you're called? Sorry.
JosefYeah,
SamYeah. Okay. The participants are involved in what they wanna do, which is so good. That is amazing. I feel like more organisations should follow that. That's really great. And how long have you been with them for?
JosefA few years now. Yeah
SamSo you appreciate them and you really enjoy your day out with them.
JosefYeah.
SamYeah. Nice. That's so important and you have friends who go to Lightbulb as well.
JosefYeah. Exactly. And I'm also involved with the choir as well. I also do an all abilities choir as well. Yeah. Yeah. Yeah
SamNice. So you love to sing? And Yeah. Well, that's amazing. So you obviously are a very sociable person it sounds like. That's so great. You mentioned before that living with a disability is very challenging for you, but on the other hand, you are also very appreciative of your disability. and so I guess, what do you wish more people understood?
JosefWhat I wish more people understood?
SamYeah. About, disability in general?
JosefWhat I wish more people understood was about inclusion and people's rights. Yeah. But also I feel like some people see people with disabilities as you know, they can't do that. They're not capable when there's a lot of them that are building good careers out there and are quite successful business people and are doing amazing things in the world.
SamAbsolutely. So just this kind of, once again, stereotype, putting people in a box that, that people with disabilities live very, different lives. Well, sorry, let me say that again. People with disabilities do live different lives, but they're still inclusive, they're still sociable, they're still working. So you feel as though the wider society is very much not seeing people with a disability as being able to work.
JosefI also feel like sometimes with people with more complex disabilities, they're sort of also looked a bit upon, not in a great way, I feel like sometimes people are shut down for having a disability and you can't have a voice. Sometimes I feel like people don't have a voice'cause they're not given opportunities to say how they feel. I feel like there's some old fashioned values where parents are the ones making choices, not the participants. I still think there's some people in the sector that have that same views with people with disabilities that they are valued in society.
SamRight. So organisations that you've been a part of or have just heard of in passing that they still kind of have that I guess view.
JosefFamilies are involved and not participant.
SamYeah. Okay.
JosefIt's family business, not participant business which isn't right.
What Good Support Really Means
SamNo. That's an interesting way of framing it, the fact that it should be participants, what they wanna do and their decisions and where they wanna go. Correct me if I'm wrong, but I'm sure Lightbulb is it all adults?
JosefYes,
SamYeah. Yeah.
JosefThey're very good at what they do. I feel like sometimes support are not. They don't know. They're not living in the shoes of people with disabilities. They're supporting us, but I don't think they always know what people actually go through the challenges,
SamSo like the day-to-day stuff that might get unspoken about, and that's a really big challenge.
JosefDon't wanna be weird, but I think sometimes people find being a support worker quite confronting. like I see on ads, I do not do this. I will not do this support. I will not support people in this. And I'm like, what?
SamSo as in like your feeling that people wanna be support workers, but they're kind of picking and choosing what. That they'll do. Yeah. And you feel as though that's not right?
JosefNo, I don't agree with it at all. I think, you know, you shouldn't, you can be selective, but I feel you shouldn't. If you're doing support work, you shouldn't.
SamYou shouldn't feel as though the worker can say, oh, I wouldn't wanna do personal care, but I'll go out, and drink with them kind of thing.
JosefYeah. I know it's not about you, but I don't know if you, have you ever experienced that with support?
SamI guess I'm lucky in that way because I would say no, I haven't experienced that. With my supports, I'm very fortunate in them being friends.
JosefI think that's an awesome thing. I think that is really good. I think that is great because that's how they should be. I see people who's like that. I see'em as like family. Like I have support to leave and I still contact them and reach out to them.
SamYep. So you still have that friendly relationship after they move away or something like that, so
JosefExactly right.
SamYeah. And that's so important to have because for me, having that connection is so valuable. I've got a bunch of amazing girls and it sounds as though you are very similar in that way.
JosefYeah, I love support support workers as well.
SamYeah. And I can imagine you being very good good at speaking about a range of things with them, and kind of telling them what's the go and what's not the go.
JosefI love support workers and I like also like reviewing support workers when I'm out in the community.
SamOh reviewing. So how do you review, just randomly?
JosefI'll just watch them.
SamOkay. Okay. Is it kinda like a mental thing you do or do you kind of like say it out loud? Yeah. Okay. Yeah.
JosefI'm very judgmental, if someone's not getting supported properly and I think their support worker is lazy, I say it. I don't say it to their face. I'll tell my mother and I'll tell other people what my views are.
Sambecause it is so sad to see a person, not being supported in the right way, or they may be ignored or the, the worker may be on their phone or whatever it is.
JosefI don't like that.
SamNo, and it's so horrible to see.
JosefI have amazing team of support, mostly girls. I've got two guys, but yeah, mostly girls and they're amazing.
SamThat's so good. And are they all from Lightbulb?
JosefNo, no, they're for another company called Fisher. So yeah, the guy I actually hoping he'll listen to this podcast. So the guy's name Steve and he's a good bloke. And he's someone that's been in the industry for a long time, like 30 something years in the disability sector. Very, very good man. Very awesome character, and he's very passionate about what he does. I told a few people I was doing this podcast and they'll said, wow. Because I think a lot of people are too nervous to say what they actually feel.
SamWhich is sad, not being comfortable enough to, I guess, share your experience or talk about something that society kind of shies away from, in a way.
JosefI don't see why people should shy away from things cause I feel it. know people are into privacy, but I feel people need to be educated on what's going on.
SamAbsolutely. I agree. I guess from my perspective, I feel that society has this mentality, like you said before, that, people with a disability just fit in a box, stay home, just twiddle their thumbs, just watch TV all day, but that's really far from the truth for so many people all over the world.
JosefYeah.
SamYeah. It sounds as though you know, you've currently got a great team of workers with you. And previously, you have kind of had to call people out when they weren't really listening to you.
JosefYeah. But I feel if you're the right person in the industry, I think it is a great industry to get involved with.
SamAnd when you say the right person, I guess, comes back to your values and, that kind of thing.
JosefBut it's also the willing to be involved in, you know, your client's goal.
Advocacy Achievements And Future Plans
SamYes. And that's so important, isn't it? And so what kind of advocacy have you?
JosefI've done a lot of things. I sat on a made Bunbury the most accessible regional city in Australia. So it was called Marcia. And that was with Dr. Adam Johnson. Adam was a PhD candidate down in Bunbury and he was working on accessibility. He did a research project with people with disabilities and I was involved with that.
SamOh wow. And so Bunbury, is Bunbury still the most accessible?
JosefI dunno if they ever got the standards for it, but he was trying to make it.
SamAnd how long ago was that, that you were a part of that?
JosefSeven years ago.
SamWow, that's so awesome. Yep.
JosefSo I did that and then I also did, I've also been involved with a number of other projects.
SamWhat are those projects if you are comfortable sharing?
JosefI was involved with setting up a club called WA iSports. I was a founding member on the board of directors for that. So we started, I think it was in 2017 we founded that and it's still running now. I'm not involved anymore, I was also, have also been a finalist in the WA Young Achieve Award.
SamThat's amazing.
JosefI was also a finalist in that, um, unfortunately didn't win, but I was a finalist and one of my biggest joys was when we won the Regional Community Group of the Year for the Regional Achievement Awards. I was pretty pumped about that when we won that award.
SamThat's amazing and to be nominated for awards is, I'm sure there's a criteria you have to meet, it just shows how passionate you are and how driven you are.
JosefBut to be a finalist in two categories. And I also won an award for my book, an international award for my book. Yeah. That's the achievement um I'm very interested in you know different things and stuff Yeah.
SamFollowing on from about your advocacy, why is advocacy and advocating for disability so important to you?
JosefI love it. Yeah, I love it.
SamJust as simple as you loving it is a good enough reason to do it. Yeah.
JosefI just love it and I
SamYeah.
JosefHelping people out.
SamThat's great. And that shows, being nominated for all these amazing awards and recognition just shows how passionate you are. I feel if you weren't as passionate and as you said, loving it as much as you are, I'm sure that that wouldn't show in your work. So that's incredible that you've had such a passion for it. Are you on any boards at the moment?
JosefNo, not doing anything at the moment. Trying to start some businesses working. So I'm gonna do some marketing for a company and I'm also trying to start a coffee delivery business.
SamOh wow. It seems as though you are always kind of working on something in the background.
JosefSo I do that.
SamYep. Amazing. And so what are you most passionate about?
JosefUm, inclusion and people's rights and understanding people and the human behaviour is very fascinating to me as well. And I find people interesting.
SamYeah.
JosefPeople may be a bit judgy about this, but it's, it's sometimes hard to know what people's capacity is. That's a very interesting area that I'm often looking at is capacity. It can be hard to know what people's capacity is sometimes.
SamIs that building relationships with people?
JosefCan also be hard to create friendships and you know, people have sensory needs and different needs.
SamSo understanding people's capacity and where they're at can influence how to build relationships.
JosefYeah.
SamYeah. So inclusion, that's a major passion for you.
JosefYes.
SamIs that something that you've always had a passion for inclusion or is it just as you've gotten older?
JosefMainly when I left school. I had to do a lot of advocacy at school because school was a great opportunity, but there was challenges. I feel at sometimes I wanted to get into leadership at school, but they were against that. They didn't really want people with disabilities doing advocacy work or, um, leadership roles.
SamAnd how did that make you feel at the time?
JosefDisgusted. Where's that group of people getting advocates for? No, they're not. I think a lot of younger people are getting better at understanding.
SamYeah. And being more open to different abilities.
JosefYeah.
SamWithin a school, within a workplace. Which is so important for anyone, no matter what your ability is, to feel included.
JosefYeah.
SamIt sounds as though, you've achieved so much and you are going to achieve so much already, which is amazing.
JosefYeah, I also was fortunate to speak at the. It was a disability conference last year. Um, they had it over here in WA, down Fremantle.
SamAnd what kind of things did you speak about there?
JosefIt was about my book and about the story of my book and stuff. So I spoke at that last year and that was a really good opportunity. I've gone to UWA before and spoken to people there.
SamMajority of those talks in regards to your book again?
JosefNo, I've also spoken to, um, social work students and different students in Canada as well.
SamOh, wow. Okay.
JosefI've got a connection in Canada. Yeah. So I do that on, on Zoom.
SamSo it always comes down to who you know, not what you know, isn't it?
JosefExactly. Yeah but like you I'm honored to meet you.
SamMm-hmm.
JosefA real honor, it's actually an honor, cause you know, to have people like you doing the podcast is very honorary. I was quite nervous to ask to come on this podcast because I was a bit scared, I was a bit nervous about it. And you know I thought this looked cool and I absolutely love the name of the podcast. I think it's a very sweet name.
SamThank you. No, and it It's been great meeting you and I really appreciate your time. I hope it wasn't as scary as sending the initial.
JosefI loved it. I love it.
SamThat's great.
Relationships Taboo And Built Accessibility
JosefI love talking to people.
SamI can really hear how passionate you are about, inclusion and, advocacy. What do you want listeners to take away from this chat today?
JosefI just want people to know to stand up for their rights and to also, if you've got people with disabilities listening to ask questions. Families to ask questions when you are interviewing support workers, ask what they've done in experience or if they've not had an experience, train them up on how you should be supported. A big thing is ask for what you want. And if you are a support worker or someone wanting to get in the industry, ask questions, ask for documents. If you want to know things, ask. You know, you are supporting them. You should know. I mean, it's good to learn things, but you should know what you are getting yourself into.
SamAbsolutely I think that was very well said actually. Having that voice is so important, isn't it? One final question for you, Josef, today, what are you most proud of?
JosefWhat am I proud of? My family. I'm very grateful for my family. Well, winning my book awards and stuff. I'm very proud of. But I, I'm very fortunate for my family, my mother and my sister and my nana.
SamYeah. Beautiful.
JosefVery beautiful women. They've taught me a lot of lessons in life.
SamMm-hmm.
JosefAnd my sister-in-law and family members. Yeah.
SamOh, beautiful. It sounds as though they're very influential people on you.
JosefYeah.
SamIs there anything else that you would like to add to this conversation today, Josef?
JosefUh, just about, people there's a lot of good people in the world.
SamYeah. There, there is definitely a lot of good people in the world. Absolutely, it's just sometimes finding those good people, isn't it?
JosefYeah. And the big thing is just to be able to get understandings on why people do certain things. It's very interesting.
SamYeah, it sounds as though you are very much always kind of wanting to know the greater depths of people's understanding and understand why they doing certain things.
JosefExactly right. I also find it interesting to learn about people. I feel like sometimes people, uh, I don't wanna sound weird, but I feel like sometimes people are not. What's the right word. I feel like some people think people with disabilities are. It's hard to explain. I feel like there's a lot of taboo subjects in the disability. I'm not trying to be rude, and I know it's wrong to say this, but I think in particularly I feel like with relationships that there's a lot of taboo subjects and I feel like there's a lot of subjects that people don't feel people disability should be hearing.
SamThey're minimising their experience around relationships and that side of things.
JosefYeah. But also I feel like there's a lot of different things out there.
SamTo support relationships?
JosefYeah and just support you know, where I've had situations where, so people, I know, I believe are a little bit isolated by their support workers and their support don't want them to do things because they don't feel they should or are too lazy for them to go and do stuff.
SamIn the way of like enhancing their connections and like relationship? Yeah.
JosefExactly right. And I think some people think it's a too hard basket to take their participants out because they think it's too hard, which I don't agree with. There is a lot of social barriers for people in the community and I feel like it's unfortunate that some things were built in the 1940s and 1950s. It's wrong how some buildings and in particularly for people in wheelchairs. I've got pretty good balance, but coming from the country to the city, I believe the foot paths up here are less accessible because I feel like there's too much gradient with, you know, hills and stuff, and I see people struggling with going up on'em, and I'm like, why would these idiots build footpaths like this when they're not accessible? If you're gonna be building a footpath, you should be consulting with people with disabilities on how the gradients, with the footpaths.
SamAbsolutely. There's so many times when you go somewhere and they're like, ah. This is not accessible far from it. And lucky, I don't have a big wheelchair, so my friends can just tip me back and go up somewhere. It's not always that easy. But it should be easy. You shouldn't have to call up somewhere and go, oh, is this place accessible?
JosefNo you don't. I think sometimes people don't realise when they build cafes, restaurants I know it's a big outlay for them, it will get them more customers.
SamAbsolutely.
JosefWe need accessibility getting into buildings and it's hard. Because it's not just for people in wheelchair. A lot of the senior citizens also struggle with their Zimmer frames. Put basic lifts and stuff in. I think some people believe certain accessibilities just use that as a store room.
SamIt really minimises people with a disability going places and we're like an afterthought, especially when the toilet is used as a store room or the change room has boxes in it. And like oh, you weren't expecting someone with a disability to, use your store.
JosefGoing back to the accessible bathrooms. I like to go into accessible bathrooms because I find them more calming and less noisy and stuff, and I go into them and I'm like, why are you using that as a store room? You're an idiot.
SamYeah, absolutely.
JosefI'm like, what the hell are you doing? Well, anyway, sorry for ranting on for this morning.
SamYou absolutely did not rant on at all. It was an amazing conversation. Thank you so much Josef for coming on this podcast and having a chat. I've really enjoyed it and I've learned a lot from you.
JosefThank you, Sam.
SamAnd that's it for today's ride. Thanks for rolling with me. Make sure you're following A Wheelie Good chat on Instagram for all the latest updates. And if you're loving the chat, don't forget to follow the podcast on your favourite streaming platform. Stay safe everyone. I'll catch you next time.